September is Hydrocephalus Awareness Month, so Corey Henderson and her son, Caine, are sharing their story.
The disease caused fluid to build up in the brain, creating pressure and impacting other parts of the body.
"I was 19 weeks pregnant. And my doctor, she said, she just kept looking and she said, 'Have you ever heard of something called hydrocephalus?’ and I'm like 'No,’" said Henderson.
Two-year-old Caine has already been through a lot in his short life, and just recently learned how to walk.
"I would do tummy time with him. He wasn't able to hold his head up until about 7 months on his own," Henderson recalled.
Caine requires both in- and out-of-the home therapy, and, at just 2 years old, has lost vision in his left eye. While doctors say there's no cure or way to prevent hydrocephalus, Caine will undergo brain surgery in October to release the fluid pressure.
"It's been a long road. It has," said Henderson. "I'm willing to fight for him, I am."