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Some children suffering inflammatory syndrome after testing positive for COVID-19

Doctors are trying to determine why some develop multi-system inflammatory syndrome and others do not.

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What many fear about COVID-19 is the unknown. Studies show most children fair well with the coronavirus, but there's a group who suffer from multi-system inflammatory syndrome and doctors don't know why.

"I get headaches a lot and my hands get weak and my legs," said Tyona Montgomery.

Montgomery is recovering from multisystem inflammatory syndrome, often known as MIS-C. A few days before her 18th birthday, she tested positive for the coronavirus. She quarantined at home and her symptoms went away, but weeks later, she started feeling awful.

    "I just got an Uber and went to St. Agnes (Hospital) by myself," Montgomery said.

    She eventually ended up at Johns Hopkins Hospital, where her condition quickly deteriorated.

    "My heart feel like it's beating out of my chest," Montgomery said.

    "Her insides shut down, every symptom of MIS-C you could have, she had — blood shot eyes, lips, her body was so bloated ... it hurt to move, the rash, the fever, the kidney failure, the organ failure — it was everything every symptom," said Kristia Reynolds, Montgomery's mother.

    According to the Centers for Disease Control and Prevention, more than 2,000 U.S. children and adolescents have been diagnosed with MIS-C since last May. Doctors are trying to determine why some develop the condition and others do not.

    Dr. Katherine Hoops treated Tyona when she was in the pediatric ICU.

    "Children and adolescents with MIS-C can be very ill. They have fever for several days and then develop significant inflammation in their bodies that causes problems with many organ systems, including heart, blood vessels, kidney, lungs, intestines, brain and skin," Hoops said. "We are making big strides towards improving diagnosis and treatment and these treatment algorithms are still evolving as we learn more about this disease process."

    Hoops said every child's recovery is different. Montgomery said she still gets winded walking a few feet, taking the steps and doing routine things.

    "I'm just glad she was smart enough to take herself to the hospital. She knew something wasn't right, let me get there. So, I'm blessed for that. God is wonderful. I'm so glad that she's here. She got a way to go, but we riding and we striving," Reynolds said.

    Montgomery has not been able to go back to school, she's still under medical care and takes a lot of medicine.

    Hoops said to prevent this, get vaccinated as soon as you can, mask up and stay away from crowds.